Choose an application

• Reference Manager
• EndNote
• RefWorks (Direct export to RefWorks)

Scholars contributing to this special issue on “Family Communication at the End of Life” have provided evidence that communication is vital for terminally ill individuals, family members, and healthcare/palliative care specialists. Overall, the fifteen articles in this special issue focus on five questions: First, what are the trends regarding different approaches for beginning the conversation about death and dying earlier rather than later? Second, who is making the end of life decisions and how are they made? Third, how does age and disease impact the way that families communicate at the end of life? Fourth, how does good communication (i.e., satisfying for all participants, effective for addressing needs, fulfilling goals) impact the myriad of complex issues at the end of life? Fifth, what is the significance of exploring and valuing the perspective of the family members’ experiences and recollections of their communication at the end of life with their terminally ill family member as well as with the healthcare providers? Overall, the scholars emphasize that focusing on family communication at the end of life is crucial for improving medical, psychological, and relational outcomes for those dealing with the death and dying process.

end of life --- communication --- family --- death and dying --- palliative care --- healthcare

Choose an application

• Reference Manager
• EndNote
• RefWorks (Direct export to RefWorks)

Healthcare ethics cannot be limited in scope to apply only to the patient but needs to apply to the healthcare practitioner as well. The relationship between the patient and the healthcare practitioner has shifted from a power relationship to a complementary relationship. Leadership, mentorship and coaching play important roles in facilitating this shift. Several themes informed this book on healthcare ethics: Vulnerability in healthcare ethics, Decisions between right and wrong, Quality of healthcare, Life-ending decisions, Community-based research, Ethical decision-making, Spritiuality in healthcare

Medical ethics & professional conduct --- healthcare ethics --- introduction --- vulnerability --- right and wrong --- quality --- approach --- influence --- culture --- values --- faith --- end-of-life --- decisions --- human rights --- euthanasia --- community --- participatory --- research --- ethical issues --- impact --- healthcare practitioners --- decision-making --- processes --- spirituality.

Choose an application

• Reference Manager
• EndNote
• RefWorks (Direct export to RefWorks)

Modern biomedical technologies managed to revolutionise the End-of-Life Care (EoLC) in many aspects. The dying process can now be “engineered” by managing the accompanying physical symptoms or by “prolonging/hastening” death itself. Such interventions questioned and problematised long-established understandings of key moral concepts, such as good life, quality of life, pain, suffering, good death, appropriate death, dying well, etc. This volume examines how multifaceted EoLC moral questions can be addressed from interdisciplinary perspectives within the Islamic tradition. Contributors Amir Abbas Alizamani, Beate Anam, Hamed Arezaei, Asma Asadi, Pieter Coppens, Hans Daiber, Khalid Elzamzamy, Mohammed Ghaly, Hadil Lababidi, Shahaboddin Mahdavi, Aasim Padela, Rafaqat Rashid and Ayman Shabana. تمكنت التكنولوجيا الحديثة في المجالات الطبية والحيوية من إحداث ثورة في مجال الرعاية الصحية عندما يكون المريض على مشارف نهاية العُمْر. فأصبح من الممكن الآن «هندسة» بعض جوانب مرحلة الاحتضار، وذلك بإدارة الأعراض الجسدية المصاحبة ومحاولة تأخير أو تعجيل حدث الوفاة. وقد أثار هذا النوع من التدخلات الطبية أسئلة وإشكالات معقدة حول عدد من المفاهيم الأخلاقية ضاربة الجذور في التراث الإسلامي خاصة، وفي الإرث الإنساني عامة، كمفاهيم: الحياة الطيبة وجودة الحياة والألم والمعاناة والميتة الصالحة. تقدم البحوث المنشورة في هذا الكتاب نماذج لكيفية معالجة هذه الأسئلة والإشكالات المتعددة الجوانب من خلال النظر في عدد من العلوم الإسلامية والمجالات المعرفية ذات الصلة. المساهمون حامد آرضائي، وأسماء أسدي، وبياته أنعم، وعاصم پادلا، وهانس دايبر، ورفقات رشيد، وخالد الزمزمي، وأمير عباس علي زماني، وأيمن شبانة، ومحمد غالي، وپيتر كوپنس، وهديل لبابيدي، وشهاب الدين مهدوي.

Death --- Terminal care --- Islamic ethics.  --- Religious aspects --- Islam.  --- Moral and ethical aspects.  --- Muslim ethics --- Religious ethics --- End-of-life care --- Terminally ill --- Care of the sick --- Critical care medicine --- Death (Islam) --- Care and treatment --- Medical care

Choose an application

• Reference Manager
• EndNote
• RefWorks (Direct export to RefWorks)

The Japanese have ambivalent attitudes toward death, deeply rooted in pre-Buddhist traditions. In this scholarly but accessible work, authors Iwasaka and Toelken show that everyday beliefs and customs--particularly death traditions--offer special insight into the living culture of Japan. The Japanese have ambivalent attitudes toward death, deeply rooted in pre-Buddhist traditions. In this scholarly but accessible work, authors Iwasaka and Toelken show that everyday beliefs and customs--particularly death traditions--offer special insight into the living culture of Japan.

Death -- Japan -- Folklore. --- Death -- Social aspects -- Japan. --- Folklore -- Japan. --- Funeral rites and ceremonies -- Japan. --- Japan -- Social life and customs. --- Legends -- Japan -- History and criticism. --- Legends -- Japan. --- Folklore --- Death --- Legends --- Funeral rites and ceremonies --- Anthropology --- Social Sciences --- Social aspects --- History and criticism --- J4157 --- J4120 --- J1715.50 --- J1740 --- J1723.80 --- Japan: Sociology and anthropology -- customs, folklore and culture -- treatment of the dead and funerals --- Japan: Sociology and anthropology -- social psychology and social-cultural phemomena --- Japan: Religion in general -- theology -- mortality, immortality, transmigration --- Japan: Religion in general -- occultism --- Japan: Religion in general -- demonology --- History and criticism. --- Japan --- Social life and customs. --- Dying --- End of life --- Folk-lore, Japanese --- Folk tales --- Traditions --- Urban legends --- Philosophy --- Folklore. --- Life --- Terminal care --- Terminally ill --- Thanatology --- Japan: Sociology and anthropology -- social psychology and social-cultural phenomena

Choose an application

• Reference Manager
• EndNote
• RefWorks (Direct export to RefWorks)

This Special Issue of the journal Children constitutes an opportune moment to reflect on the psychosocial needs of children living with rare diseases and of their families. As medical advances, treatments, and developments have enabled many of these children to survive infancy and to live into adulthood, progress brings with it concerns and opportunities to enhance the psychosocial quality of life of children living with rare diseases, and of their families. This Special Issue reflects the current state of psychosocial research, which is primarily qualitative in nature. There are no scientifically rigorous randomized clinical trials to create an evidence base of effective psychosocial interventions for the provision of care to children with rare diseases and to their families; nevertheless, the papers within this Special Issue provide a reflection on the state of the science, including ideas about future research and practice. In this next section we share observations about the contributions made by each of the 13 articles, which cover a diverse range of topics.

Psychology --- cancer --- childhood cancer --- adaptation --- psychological --- neoplasm --- oncology --- sibling --- social support --- social adjustment --- palliative care --- end-of-life care --- equity --- public health approach --- compassionate communities --- caregiving --- parents --- psychosocial support --- rare disease --- advance care planning --- decision-making --- family caregiver --- psychosocial care --- communication --- pediatric --- adolescents and young adults --- healthcare needs --- chronic illness --- AYA transition --- Beckwith–Wiedemann syndrome --- emotional-behavioral problems --- psychosocial difficulties --- psychomotor development --- preschool-age children --- pediatric chronic illness --- rare diseases --- family caregivers --- gender differences --- genetic or rare diseases --- health outcomes --- illness perception --- parenting stress --- siblings --- bereavement --- emotions --- psychosocial distress --- pediatrics --- complex chronic conditions --- pediatric to adult transition --- special needs --- interventions --- care coordination --- transition readiness --- family burden --- parental need --- urea cycle disorders --- E-IMD --- inherited metabolic diseases --- medullary thyroid carcinoma --- psychosocial --- young adults --- life-limiting conditions --- adolescents --- age-appropriate --- development --- cognitive functions --- children --- families --- medical complexity --- policy --- advocacy --- n/a --- Beckwith-Wiedemann syndrome